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5

There Is No Wrong Decision

By | NESCA Notes 2020

By:  Alissa Talamo, Ph.D.
Pediatric Neuropsychologist

We are living in an unprecedented time. As such, parents are faced with decisions that they have never faced before. For example, families are facing the challenging decision about whether or not to send their children back to school for in-person classes in the middle of the COVID-19 pandemic. Parents have to wrestle with the idea that, on the one hand, sending children to school could increase the risk of COVID-19 among children and family members; while on the other hand, children who don’t return to in-person school may experience disruptions in their education and may miss out on the social interaction and community feeling within the school building. In addition, some families simply don’t have a choice because they need to go to work or a family member at home is immunocompromised.

What is most important is to recognize is that whether or not to send a child to school in the fall means something different to everybody. It is imperative that, as parents, you give yourself permission to feel whatever it is that you are feeling, and that you do what feels right for you and your family. It may be difficult to accept, but we have little control over much of what is happening around us right now. While it is important to acknowledge how you are feeling, it is equally important to remember that, in fact, any reactions are normal under the current circumstances.

How you respond to stress during the COVID-19 pandemic can depend on your background, your financial situation, your health and emotional background, your social support system, the community you live in and many other factors. When it comes to parenting, every day can be a challenge, and the coronavirus has made an already scary world feel even more menacing.  Remember to “ignore the noise” and give yourself credit for taking care of yourself and your family.

 

 

About the Author:

With NESCA since its inception in 2007, Dr. Talamo had previously practiced for many years as a child and adolescent clinical psychologist before completing postdoctoral re-training in pediatric neuropsychology at the Children’s Evaluation Center.

After receiving her undergraduate degree from Columbia University, Dr. Talamo earned her doctorate in clinical health psychology from Ferkauf Graduate School of Psychology and the Albert Einstein College of Medicine at Yeshiva University.

She has given a number of presentations, most recently on “How to Recognize a Struggling Reader,” “Supporting Students with Working Memory Limitations,” (with Bonnie Singer, Ph.D., CCC-SLP of Architects for Learning), and “Executive Function in Elementary and Middle School Students.”

Dr. Talamo specializes in working with children and adolescents with language-based learning disabilities including dyslexia, attentional disorders, and emotional issues. She is also interested in working with highly gifted children.

Her professional memberships include MAGE (Massachusetts Association for Gifted Education), IDA (International Dyslexia Association), MABIDA (the Massachusetts division of IDA) and MNS (the Massachusetts Neuropsychological Society).

She is the mother of one teenage girl.

To book a consultation with Dr. Talamo or one of our many other expert neuropsychologists, complete NESCA’s online intake form.

Neuropsychology & Education Services for Children & Adolescents (NESCA) is a pediatric neuropsychology practice and integrative treatment center with offices in Newton, Massachusetts, Plainville, Massachusetts, and Londonderry, New Hampshire, serving clients from preschool through young adulthood and their families. For more information, please email info@nesca-newton.com or call 617-658-9800.

16

Positive Coping Strategies for Stress, Anxiety and Trauma During Times of Crisis

By | NESCA Notes 2020

By Renée Marchant, Psy.D.
Pediatric Neuropsychologist

Amidst the global pandemic, children, their caregivers, their teachers and therapists are naturally experiencing heightened stress and anxiety. We are more likely to be sent into “fight, flight, freeze, mode” – the body and brain’s critical survival strategy to prepare and deal with perceived threat. For example, when you see a Grizzly Bear on your hiking trail, you instinctually run, fight back or hide.

However, we can become “stuck” or more sensitive to this instinctual urge, which is not adaptive and can negatively impact physical, emotional and social health. For example, chronic deployment of the “flight, flight, freeze” response occurs for individuals who experience post-traumatic stress disorder. Chronic deployment of “fight, flight, freeze” responses is also more likely amidst a global pandemic, such as COVID-19. Importantly, chronic deployment of “fight, flight, freeze” responses also occurs for individuals and communities who experience chronic racial injustice and oppression.

Under chronic experiences of stress and threat, our body remains activated and hyper-aroused, even when deploying this response is not helpful. For example, children may shut down or dysregulate when faced with even small stressors – making an error on a math worksheet or even accidentally spilling something on the table. Children and teens may be more irritable, defiant or isolative. Overall, chronic deployment of the “fight, flight, freeze” response heightens anxiety, stress and general feelings of malaise.

So, what can we do? What can we do to “turn off” or lessen this stress response? What are some ways to positively cope during these difficult times?

  1. Research shows that the #1 resiliency factor is the reliable presence of at least one supportive relationship with an adult. Build connection and community through shared activities and conversations about your experiences. Remember to always take care of yourself before taking care of others – self-care is critical.
  2. Focus on validation first; problem-solving second. Validating, acknowledging and accepting pain, distress, hurt and the like builds communication and naturally decreases tension and stress. Validation is the essential first step prior to action, problem-solving and positive coping.
  3. In order to grow positive coping, it is helpful to build mastery and self-expression. Strategies that can help to both organize and “release” feelings and stressful experiences rather than “bottle them up” include:
  • Use your body to heal your mind: play, do yoga, engage with nature, exercise;
  • Engage in shared action to promote communication and change at a community and systemic level. Volunteer or advocate for a cause of importance. Contact your local legislators and express your concerns;
  • Write or draw about your experience. Use collages, images or videos to express your goals, experiences and fears;
  • Engage in therapeutic movement. Create a music playlist for various emotions. Dance or engage in rhythmic actions (e.g. knitting, pottery);
  • Identify your strengths and what you value in life. Happiness is fleeting – goals and values last longer and support positive coping. For a free strengths and values survey, check out: https://www.viacharacter.org/;
  • Connect with community resources available in your area, such as therapists, mentors, religious organizations, support groups, local-nonprofits, etc.; and
  • Be kind to yourself and practice self-compassion.

To learn more about this topic, a helpful webinar is available at “Supports for Students with a History of Trauma and Significant Anxiety,“ presented by Dr. Renee Marchant, PsyD, and Dr. Stephanie Monaghan-Blout, PsyD.

 

About the Author:

Dr. Renée Marchant provides neuropsychological and psychological (projective) assessments for youth who present with a variety of complex, inter-related needs, with a particular emphasis on identifying co-occurring neurodevelopmental and psychiatric challenges. She specializes in the evaluation of developmental disabilities including autism spectrum disorder and social-emotional difficulties stemming from mood, anxiety, attachment and trauma-related diagnoses. She often assesses children who have “unique learning styles” that can underlie deficits in problem-solving, emotion regulation, social skills and self-esteem.

Dr. Marchant’s assessments prioritize the “whole picture,” particularly how systemic factors, such as culture, family life, school climate and broader systems impact diagnoses and treatment needs. She frequently observes children at school and participates in IEP meetings.

Dr. Marchant brings a wealth of clinical experience to her evaluations. In addition to her expertise in assessment, she has extensive experience providing evidence-based therapy to children in individual (TF-CBT, insight-oriented), group (DBT) and family (solution-focused, structural) modalities. Her school, home and treatment recommendations integrate practice-informed interventions that are tailored to the child’s unique needs.

Dr. Marchant received her B.A. from Boston College with a major in Clinical Psychology and her Psy.D. from William James College in Massachusetts. She completed her internship at the University of Utah’s Neuropsychiatric Institute and her postdoctoral fellowship at Cambridge Health Alliance, a Harvard Medical School teaching hospital, where she deepened her expertise in providing therapy and conducting assessments for children with neurodevelopmental disorders as well as youth who present with high-risk behaviors (e.g. psychosis, self-injury, aggression, suicidal ideation).

Dr. Marchant provides workshops and consultations to parents, school personnel and treatment professionals on ways to cultivate resilience and self-efficacy in the face of adversity, trauma, interpersonal violence and bullying. She is an expert on the interpretation of the Rorschach Inkblot Test and provides teaching and supervision on the usefulness of projective/performance-based measures in assessment. Dr. Marchant is also a member of the American Family Therapy Academy (AFTA) and continues to conduct research on the effectiveness of family therapy for high-risk, hospitalized patients.

 

To book an evaluation with Dr. Marchant or one of our many other expert neuropsychologists, complete NESCA’s online intake form.

 

Neuropsychology & Education Services for Children & Adolescents (NESCA) is a pediatric neuropsychology practice and integrative treatment center with offices in Newton and Plainville, Massachusetts, and Londonderry, New Hampshire, serving clients from preschool through young adulthood and their families. For more information, please email info@nesca-newton.com or call 617-658-9800.

 

5

“Can I Hug You?” – Why the pandemic has us craving closeness

By | NESCA Notes 2020

By: Angela Currie, Ph.D.
Pediatric Neuropsychologist, NH Director, NESCA

At the end of a testing session last week, my young client and I stood looking at each other through the large glass window of our contactless, adjoined testing rooms. Our hands were newly washed; the fresh scent of antibacterial wipes emitted from the tables; and our face coverings were in place. And while looking at one another from our respective bubbles, inside this necessarily sterile setting, my client looked me in the eye and asked: “Can I hug you?”

The question hung in the air for a moment. In the 15 years that I have worked with children, I have rarely hesitated when a child asks me this. But there we were, mid-pandemic, in this brief, perhaps imperceptible, moment of uncertainty.

One thing I have become keenly aware of since starting to see family and friends for socially distanced visits is how much I, and my children, have to consciously fight the physical urge to embrace the people we love. The urge is palpable. But where does this come from?

There is a great body of research demonstrating the importance of physical touch, particularly hugging. Hugs are not just a simply a way of demonstrating your love or support for someone, but hugging actually causes physiological changes within the body. Stress hormones, such as cortisol, reduce, and the nervous system slows down. Oxytocin – a hormone integral to bonding – is released, increasing closeness and affection. Over time, close physical contact results in improved brain development, heart health, emotional health, relationship patterns and immune function.

In many ways, physical touch is a basic human need that must be met. Individuals who are deprived of these experiences, particularly early in life, can experience detrimental effects. Fortunately, some of these effects can be mitigated once opportunities for closeness are offered. As such, our bodies and brains never fully give up on the urge for closeness, even after long durations of it being unmet. And this urge has a name – skin hunger.

Most people have felt skin hunger at some point – a driving urge for human contact and connection. This may come after a particularly stressful day at work, an argument with a friend or just a general feeling of loneliness. In times of uncertainty, distress or instability, the human need for closeness increases. And yet, for so many who are enduring the COVID-19 pandemic, closeness is the exact thing that they are being deprived of. Even when we are lucky enough to still have access to our families, or perhaps a small group of close friends, our emotional needs are high. Physiologically, psychologically, we need more hugs.

The good news is, there are things that you can do to meet this need:

  • Consciously make an effort to hug those you can, and do it more often than typical.
  • Snuggle up with your dog, your cat or other pet of choice.
  • For those who live alone and do not have pets, a weighted blanket, warm bath or hugging a pillow can simulate the effects of human touch.
  • Maintain social connection through video chat, phone calls and socially distanced visits. Interpersonal contact without hugging is better than no contact.
  • Be careful to not accidentally over-associate hugs or touch with danger. Coronavirus will eventually be managed, but training our children to fear closeness could have enduring, negative effects. Choose words wisely, teaching pragmatic, unemotional caution, not fear.

 

About the Author:

Dr. Angela Currie is a pediatric neuropsychologist at NESCA. She conducts neuropsychological and psychological evaluations out of our Londonderry, NH office. She specializes in the evaluation of anxious children and teens, working to tease apart the various factors lending to their stress, such as underlying learning, attentional, or emotional challenges. She particularly enjoys working with the seemingly “unmotivated” child, as well as children who have “flown under the radar” for years due to their desire to succeed.

 

To book an evaluation with Dr. Currie or one of our many other expert neuropsychologists, complete NESCA’s online intake form. Indicate whether you are seeking an “evaluation” or “consultation” and your preferred clinician in the referral line.

 

Neuropsychology & Education Services for Children & Adolescents (NESCA) is a pediatric neuropsychology practice and integrative treatment center with offices in Londonderry, NH, Plainville, MA, and Newton, MA serving clients from preschool through young adulthood and their families. For more information, please email info@nesca-newton.com or call (603) 818-8526.

18

Transition Planning Timelines for Students with Disabilities

By | NESCA Notes 2020

By: Kelley Challen, Ed.M., CAS
Director of Transition Services; Transition Specialist

When families come to NESCA for transition support, a common request is to work with a transition specialist to create a detailed step-by-step transition plan with action items and deadlines that will ensure their child makes a successful transition to postsecondary adulthood. As you can imagine, many hours are needed to create an appropriate plan individualized to the student—their goals and their needs—and this plan requires frequent updating as students progress toward adulthood, have new experiences, stumble at new hurdles and make developmental leaps. However, for families who are interested in creating an individualized transition timeline plan for their student at home, there are a number of readymade timelines and checklists that can be used as starting points. While I am presenting several options below, I would encourage picking the one that you like best and that fits your child best, and using that as a foundation for your planning. Please note that even though the resources below that have been assembled by agencies who specifically support individuals with autism and are therefore described as focusing on autism spectrum disorder (ASD), they may still be important for individuals with other disabilities to review.

Transition from School to Adult Life – Time Lines, by The Arc of Massachusetts, is a two-page brochure that includes bulleted timeline recommendations for students ages 13-22

A Resource Guide for Transition Aged Youth and Young Adults with Autism Spectrum Disorder (ASD), by the Autism Commission, is a 12-page pamphlet compiled to help families and individuals in the state of Massachusetts to better understand the resources available for students aged 14-22 with ASD. If viewing this pamphlet online, it is important to closely follow the page numbers. The Transition Timeline starts on page two and continues through page four.

Transitioning teens with autism spectrum disorders: Resources and timeline planning for adult living, by the Autism Consortium, is a 73-page guide intended to provide resources and information for parents and guardians of children with ASDs in Massachusetts. Pages 64-70 outline critical timelines related to education, guardianship, housing, postsecondary education, employment, healthcare, recreation and more for students ranging from age 11-22.

A Family Guide to Transition Services in Massachusetts, published by the Massachusetts Rehabilitation Commission (MRC) in collaboration with the Federation for Children with Special Needs (FCSN), is a 44-page guide intended to assist parents, students and professionals in understanding the requirements of transition services for all individuals with disabilities that are eligible for special education in Massachusetts. Pages 22-23 offer an easy-to-read timeline covering important steps for youth ages 14-18.

Important Transition Information Every Family Should Know: Transition Information Fact Sheets, by the Massachusetts Department of Developmental Services, is a 44-page compilation of fact sheets with important information for all families of individuals with developmental disabilities in Massachusetts. The fifth fact sheet, on page 9, is a simple but detailed visual timeline covering steps for students ages 14-22.

Turning 18 Checklist, by Autism Housing Pathways, is not a timeline! But it is a detailed and continually updated three-page document with a checklist of critical steps to take when a student with a disability turns 18 as well as a list of useful transition resources that correlate with the checklist. While the document was created by Autism Housing Pathways, the checklist is applicable for many individuals who are turning 18 and who may be seeking human service supports and disability-related benefits.

 

If you are interested in working with a transition specialist at NESCA for consultation, coaching, planning or evaluation, please complete our online intake form: https://nesca-newton.com/intake-form/.

 

About the Author:

Kelley Challen, Ed.M., CAS, is NESCA’s Director of Transition Services, overseeing planning, consultation, evaluation, coaching, case management, training and program development services. She is also the Assistant Director of NESCA, working under Dr. Ann Helmus to support day-to-day operations of the practice. Ms. Challen began facilitating programs for children and adolescents with special needs in 2004. After receiving her Master’s Degree and Certificate of Advanced Study in Risk and Prevention Counseling from Harvard Graduate School of Education, Ms. Challen spent several years at the MGH Aspire Program where she founded an array of social, life and career skill development programs for teens and young adults with Asperger’s Syndrome and related profiles. She additionally worked at the Northeast Arc as Program Director for the Spotlight Program, a drama-based social pragmatics program, serving youth with a wide range of diagnoses and collaborating with several school districts to design in-house social skills and transition programs. Ms. Challen is co-author of the chapter “Technologies to Support Interventions for Social- Emotional Intelligence, Self-Awareness, Personality Style, and Self-Regulation” for the book Technology Tools for Students with Autism. She is also a proud mother of two energetic boys, ages six and three. While Ms. Challen has special expertise in supporting students with Autism Spectrum Disorders, she provides support to individuals with a wide range of developmental and learning abilities, including students with complex medical needs.

Neuropsychology & Education Services for Children & Adolescents (NESCA) is a pediatric neuropsychology practice and integrative treatment center with offices in Newton, Massachusetts, Plainville, Massachusetts, and Londonderry, New Hampshire, serving clients from preschool through young adulthood and their families. For more information, please email info@nesca-newton.com or call 617-658-9800.

1

Preparing our Kids to Reenter the Community

By | NESCA Notes 2020

By: Erin Gibbons, Ph.D.
Pediatric Neuropsychologist, NESCA

For many children, new experiences are frightening and anxiety-provoking. Children thrive on routine and predictability; when these get interrupted, it can be hard for them to understand what is happening. As we all know, the last few months have been fraught with unpredictability and change. Now, we are starting to go back to work, eat at restaurants and visit retail stores. As adults, we might have mixed feelings about this – relief to get out of the house but also fear about the ongoing pandemic. For our children, we are expecting them to reenter their communities with a new set of “rules” after months of being in the safety of their homes. This is going to be a difficult process, especially for children with special needs.

So how do we prepare children for all of the new experiences they are about to face?

One method that has been found to be effective is the use of Social Stories™. Social Stories were first developed in 1990 by Carol Gray, a special education teacher. In essence, Social Stories are used to explain situations and experiences to children at a developmentally appropriate level using pictures and simple text. In order to create materials that are considered a true Social Story, there are a set of criteria that must be used. More information can be found here: https://carolgraysocialstories.com/social-stories/what-is-it/.

While special educators or therapists are expected to use this high standard in their work, it is also relatively easy for parents to create modified versions of these stories to use at home. I was inspired by one of my clients recently who made a story for her son with Down syndrome to prepare him for the neuropsychological evaluation. During her parent intake, she took pictures of me and the office setting. At home, she created a short book that started with a picture of her son, a picture of their car, a picture of my office, a picture of me and so on. On each page, she wrote a simple sentence:

  • First we will get in the car
  • We will drive to Dr. Gibbons’ office
  • We will play some games with Dr. Gibbons
  • We will go pick a prize at Target
  • We will drive home

Throughout the evaluation, she referred to the book whenever her son became frustrated by the tests or needed a visual reminder of the day’s schedule. Something that probably only took a few minutes to create played an important role in helping her son feel comfortable and be able to complete the evaluation.

The options for creating similar types of stories are endless, giving parents a way to prepare their children for a scary experience.

Some examples of stories to create during the ongoing pandemic:

  • Wearing a mask when out of the house
  • Proper hand washing
  • Socially distant greetings (bubble hugs, elbow bumps, etc.)

Some examples of more general stories include:

  • Doctor’s visits
  • Going to the dentist
  • Getting a haircut
  • Riding in the car
  • First day of school

You can use stock photos from the internet or pictures of your child and the actual people/objects they will encounter. If you have a child who reads, you can include more text; if your child does not read, focus on pictures only. Read the story with the child several times in the days leading up to the event. For ongoing expectations (e.g., wearing a mask) – you can review the story as often as needed. Keep it short and simple. And have fun with it!

 

About the Author: 

Erin Gibbons, Ph.D. is a pediatric neuropsychologist with expertise in neurodevelopmental and neuropsychological assessment of infants,

children, and adolescents presenting with developmental disabilities including autism spectrum disorders, Down syndrome, intellectual disabilities, learning disabilities, and attention deficit disorders. She has a particular interest in assessing students with complex medical histories and/or neurological impairments, including those who are cognitively delayed, nonverbal, or physically disabled. Dr. Gibbons joined NESCA in 2011 after completing a two-year post-doctoral fellowship in the Developmental Medicine Center at Boston Children’s Hospital. She particularly enjoys working with young children, especially those who are transitioning from Early Intervention into preschool. Having been trained in administration of the Autism Diagnostic Observation Schedule (ADOS), Dr. Gibbons has experience diagnosing autism spectrum disorders in children aged 12 months and above.

 

If you are interested in booking an evaluation with Dr. Gibbons or another NESCA neuropsychologist, please fill out and submit our online intake form. 

 

Neuropsychology & Education Services for Children & Adolescents (NESCA) is a pediatric neuropsychology practice and integrative treatment center with offices in Newton and Plainville, Massachusetts, and Londonderry, New Hampshire, serving clients from preschool through young adulthood and their families. For more information, please email info@nesca-newton.com or call 617-658-9800.

2

Testing at NESCA during COVID-19

By | NESCA Notes 2020

By: Ann Helmus, Ph.D.
NESCA Founder/Director

I’m sure you can agree, it’s been an interesting time due to the onset of COVID-19. Our worlds, livelihoods and professional lives have been turned upside down. At NESCA, where our entire business revolves around the in-person evaluations, assessments, coaching and treatment of children, adolescents and young adults, much of our “In Real Life (IRL)” activity had to be put on hold to prevent the risk of infection among our clients and staff.

After making the decision to temporarily close our physical offices, our clinical and administrative staff swiftly geared up to provide as many services as possible remotely. While we were considered an “essential” business by the State of Massachusetts, we opted to pause our neuropsychological testing for the safety of all involved while initiating research into how we could conduct this critical service to our families. We are keenly aware of the long wait times for testing and the associated stress that puts on parents while they seek out answers about their children’s behavior or learning differences—all the while making children who need supports earlier than later wait in the wings as well. We also knew there would be an increased need for testing because of the impact COVID-19 was and is likely to have on the mental health of children and teens; schools would eventually be inundated with a back-log of evaluations already in the works as well requests for new evaluations that, by law, have to be conducted within a specific time period; and to help fulfill the ever-present need to assist schools and parents in providing support to children with special needs.

Knowing our pause of testing was not a long-term, viable option, after careful consideration and much intense research, we identified several options on how we could bring our neuropsychological evaluation services back to the NESCA community. The options we identified as possibilities included conducting teletherapy, using a partial plexiglass screen (akin to what you would see protecting a store cashier), observing social distancing and constructing a two-office model. We examined the risk to both clients and clinicians, privacy and technology constraints, ethics surrounding the validity of the test findings and legal issues concerning the credibility of evaluation findings/diagnosis among other topics.

While we determined that teletherapy has a role in the testing process, including parent intake and feedback sessions, we ultimately decided that it would not be a solution for NESCA to adopt for the actual evaluation of a child. Next, the partial plexiglass shield did not provide enough risk mitigation for the child or evaluator, and it may not have been a secure enough physical barrier for some of the more aggressive children we test to keep both parties properly distanced.

So, where does that leave us? We do have social distancing in the mix as a potential option. While it does not provide maximum risk reduction, some families see it as the most natural option. The child, and if necessary, a parent helper, are at one end of a long conference table, and the evaluator is at the other end, at least six feet away at all times. All people in the room wear masks to further reduce risk. All testing materials are set up in advance for the child or parent helper. Most tests can be conducted on an iPad, which is controlled by the evaluator’s computer.

Since we were very aware that some parents would not be comfortable with this model, we continued our exploration and education, landing on an innovative two-office model. The two-office set-up involves a four foot by eight foot clear plexiglass window to be installed between two offices. This allows for clear observation of the child by the evaluator, the ability for the child and evaluator to communicate with each other via a high-quality intercom system and for the evaluator to visually demonstrate activities that the child is asked to perform during testing. A parent helper can be allowed in the room with the child should they need support during the session. Again, many of the tests would be administered via an iPad, which is controlled by the evaluator in the adjoining room. All additional test materials are organized and arranged in the office where the child is prior to testing.

NESCA’s two-office approach was piloted in our Londonderry, N.H. office by Dr. Angela Currie. Due to its maximum risk reduction for all parties and its similarity to the standard testing experience, NESCA expanded its testing capabilities with this model to the Newton office, where there are currently two of these testing areas available. While it does have some limitations, it is working very well with our families.

Along with the new testing models implemented, NESCA is, of course, taking all precautions available to reduce risk of exposure. We require risk assessment questionnaires, temperature checks and hand sanitizing; implemented a “touchless” check-in process; limit the number of people to a total of eight at one time in the 7,000 square foot Newton office, with testing being done at opposite ends of the office; provide private waiting rooms for parents who are not involved in the child’s testing; and sanitize all equipment and rooms used both before and after every appointment. We continue to follow the CDC and State’s guidelines for re-opening requirements.

We are very proud of our ability to continue to serve parents, children, families and schools during this extremely difficult time. I am once again so grateful to the cohesive and collaborative team we have in place here at NESCA and for its creativity, innovation, determination and dedication. The needs of families with children who have special needs never stop. While we may be forced to pause, NESCA will do everything in its power not to stop either.

Resources/Notes:

  • To view the Federation for Children with Special Needs webinar with Dr. Ann Helmus, visit Testing in the Age of Remote Learning
  • Dr. Helmus will present, “Testing in the Time of Covid,” to the Massachusetts Urban Project, a statewide network of special education leaders from 15 urban school districts across the state, on June 9.
  • Dr. Helmus will present on this topic in conjunction with Massachusetts Advocated for Children in June TBD.

 

About the Author: 

NESCA Founder/Director Ann Helmus, Ph.D. is a licensed clinical neuropsychologist who has been practicing for almost 20 years. In 1996, she jointly founded the  Children’s Evaluation Center (CEC) in Newton, Massachusetts, serving as co-director there for almost ten years. During that time, CEC emerged as a leading regional center for the diagnosis and remediation of both learning disabilities and Autism Spectrum Disorders.

In September of 2007, Dr. Helmus established NESCA (Neuropsychology & Education Services for Children & Adolescents), a client and family-centered group of seasoned neuropsychologists and allied staff, many of whom she trained, striving to create and refine innovative clinical protocols and dedicated to setting new standards of care in the field.

Dr. Helmus specializes in the evaluation of children with learning disabilities, attention and executive function deficits and primary neurological disorders. In addition to assessing children, she also provides consultation and training to both public and private school systems. She frequently makes presentations to groups of parents, particularly on the topics of non-verbal learning disability and executive functioning.

To book an evaluation with Dr. Helmus, NESCA Founder and Director, or one of our many other expert neuropsychologists, complete NESCA’s online intake form. 

Neuropsychology & Education Services for Children & Adolescents (NESCA) is a pediatric neuropsychology practice and integrative treatment center with offices in Newton and Plainville, Massachusetts, as well as Londonderry, New Hampshire. NESCA serves clients from preschool through young adulthood and their families. For more information, please email info@nesca-newton.com or call 617-658-9800.

18

Making Decisions in Adulthood: Some Options

By | NESCA Notes 2020

By: Kelley Challen, Ed.M., CAS
Director of Transition Services; Transition Specialist

As a transition specialist working with students from middle school through young adulthood, one of the biggest transitions that students make is “turning 18” or when they reach the Age of Majority (i.e., the legal age established by state law at which the person is no longer a minor) and gain the rights and responsibilities for making educational, medical, financial and other legal decisions. For students who have had a tremendous amount of support at home and in school, this transition can be challenging. Some students are not ready to make competent decisions for themselves, and other students may never be capable of making competent and informed decisions independently. If your child or a student you are working with needs help making decisions in adulthood, there are several options for organizing decision-making in adulthood. Because I am not a legal agent, I do always suggest that families consult with experts, such as special needs attorneys, financial planners and medical experts, as they work toward determining the best legal decision-making arrangement for their child.

Here are some basic descriptions of decision-making options you may consider for your child:

Power of Attorney (POA): A written authorization that allows a person to represent or act on another’s behalf. There are different types of POAs, and they can be written specific to whatever acts the individual wants the agent to be able to perform (e.g., private affairs, business, financial, medical or some other legal matter).

Health Care Proxy: A legal instrument with which the individual appoints a healthcare agent to make healthcare decisions on behalf of the individual when he or she is incapable of making and executing the healthcare decisions stipulated in the proxy. One way this is different from a POA is that the healthcare agent is only able to make medical decisions for the individual during the time when that individual is incapacitated. However, some healthcare professionals may view a healthcare proxy as a desire to share medical decision-making even though that is not exactly the letter of the law.

Guardianship/Conservatorship: A court-ordered arrangement whereby one or more persons are given legal authority to make decisions on behalf of another person. Guardianship and conservatorship are used when the person’s decision-making capacity is so impaired that the person is unable to care for his or her own personal safety or to provide for his or her necessities of life. Guardians and conservators may have limited decision-making power or general broad control. While POAs and health care proxies are arrangements that might be considered mainstream as they can be accessed by any adult with or without a disability, guardianship and conservatorship are more extreme options as a guardian is taking full or partial control over an individual’s affairs and taking away some of that person’s legal and civil rights.

Supported Decision-Making (SDM): SDM is an alternative to guardianship whereby the individual with a disability selects supporters who will assist the individual in making their own decisions. It allows an individual with a disability to make his or her own decisions about life choices with the support of a designated person or team of trusted supporters. This is an alternative to guardianship which is becoming more popular in Massachusetts and many other states across the country. To learn more about SDM, check out the National Resource Center for Supported Decision-Making and the Supported Decisions Site from the Center for Public Representation.

If you are looking for more information about special needs legal planning specific to Massachusetts, these are a handful of resources you may want to explore:

 

If you are interested in working with a transition specialist at NESCA for consultation, coaching, planning or evaluation, please complete our online intake form: https://nesca-newton.com/intake-form/.

 

About the Author:

Kelley Challen, Ed.M., CAS, is NESCA’s Director of Transition Services, overseeing planning, consultation, evaluation, coaching, case management, training and program development services. She is also the Assistant Director of NESCA, working under Dr. Ann Helmus to support day-to-day operations of the practice. Ms. Challen began facilitating programs for children and adolescents with special needs in 2004. After receiving her Master’s Degree and Certificate of Advanced Study in Risk and Prevention Counseling from Harvard Graduate School of Education, Ms. Challen spent several years at the MGH Aspire Program where she founded an array of social, life and career skill development programs for teens and young adults with Asperger’s Syndrome and related profiles. She additionally worked at the Northeast Arc as Program Director for the Spotlight Program, a drama-based social pragmatics program, serving youth with a wide range of diagnoses and collaborating with several school districts to design in-house social skills and transition programs. Ms. Challen is co-author of the chapter “Technologies to Support Interventions for Social- Emotional Intelligence, Self-Awareness, Personality Style, and Self-Regulation” for the book Technology Tools for Students with Autism. She is also a proud mother of two energetic boys, ages six and three. While Ms. Challen has special expertise in supporting students with Autism Spectrum Disorders, she provides support to individuals with a wide range of developmental and learning abilities, including students with complex medical needs.

Neuropsychology & Education Services for Children & Adolescents (NESCA) is a pediatric neuropsychology practice and integrative treatment center with offices in Newton, Massachusetts, Plainville, Massachusetts, and Londonderry, New Hampshire, serving clients from preschool through young adulthood and their families. For more information, please email info@nesca-newton.com or call 617-658-9800.

6

Strong Mental Health is So Important During a Pandemic

By | NESCA Notes 2020

By Dot Lucci, M.Ed., CAGS

Director of Consultation and Psychoeducational Services, NESCA

In March, 2020, a poll conducted by the American Psychiatric Association found that more than a third of all Americans (36%) stated that Covid-19 is having a serious impact on their mental health; 59% said it is a having a major impact on their daily lives; 48% are anxious about contracting Covid-19; 62% are anxious about a loved one becoming ill; and 68% feel it will have a serious impact on our economy. Needless to say, we are living in an unprecedented time due to Covid-19, and it will have a serious impact on people’s mental and physical health both now and for some time. It has created stress, anxiety and depression even as we are learning to cope and adjust to this current new normal.

Given these numbers, many adults, teens and children are struggling with a myriad of challenges, stressors and losses during this pandemic (i.e. missing graduations, births, food insecurity and financial insecurities, including job losses, etc.). Deciding how to alleviate the pain and suffering can be daunting. Psychological, medical/psychopharmacological, complementary (i.e. acupuncture), behavioral and educational treatments are possible choices and can assist in alleviating some pain and suffering. What better time than now to get yourself and your loved ones some mental health support?

This blog will review a variety of treatment approaches which are now being offered through telehealth. There are many HIPAA-protected platforms that clinicians are using to meet their client’s needs as well as some “wearables” to assist in treatment. Wearables transmit your biophysiological data to your clinician so s/he may use it in conjunction with and/or inform treatment.

Mental health treatments include many different types: psychotherapy (also known as “talk therapy” or “insight-based therapy”), psychoeducational, biofeedback, social training, mindfulness/relaxation and so many more. Approaches to psychological treatment may include individual, group, family or couples work, and there is no one single approach that works for everyone. Psychological treatment is typically provided by a licensed psychologist, social worker, mental health counselor, expressive therapist, psychiatrist and/or psychiatric nurse.  Many factors go into making psychological treatment decisions, but when it comes to therapy it is most important to have “goodness of fit” between the clinician and the client. The client needs to “get along with” and feel valued, supported and understood by their practitioner. This enhances the effectiveness of whatever treatment approach or method is utilized.

Reviewing the differences between treatment approaches may help you in your decision- making process beyond “the goodness of fit.” Psychotherapy involves talking with a clinician to address emotional, psychological and behavioral challenges that can be both conscious and unconscious. The client’s past experiences, perceptions and history play an important role in psychotherapy. The client “tells their story,” which helps the clinician understand their life experiences through their eyes, which allows treatment to be tailored to their experiences. By working through one’s thoughts, past experiences and stressors with a caring clinician, the client is able to gain insight, perspective and strategies to alleviate pain and suffering and manage unhealthy thought patterns and behaviors. The aim is to help the client understand their past and to recognize its influence on their current situation. Often psychotherapy is long- term and involves good communication/language skills as well as higher level thinking and insight capacity. However, psychotherapy can also be short-term and specifically focused on the thoughts, feelings and behaviors associated with Covid-19 and its impact on a person’s life.

Psychoeducational treatment is somewhat different than psychotherapy. Psychoeducational treatment can be provided to individuals, groups, family member, couples, employers and others. Education is central to treatment, and it is a more directive approach. It can have very specific goals and may be short-term. The past is not actively addressed; the purpose is to educate the client to acknowledge, accept and understand their disability and/or mental health condition and provide ways to support growth, change and meet goals. Psychoeducational treatment may include informative reading material, video analysis, homework, data collection, biofeedback, journal writing and much more.

Some of the goals of both treatment approaches are to connect how thoughts, feelings and behavior are connected, improve coping and problem solving to better deal with life stressors, increase positive self-regard, and to recognize and better deal with strong emotions. Many clinicians have training in specific techniques and use a combination of approaches in their practice. Yet, sometimes a specific approach may be the best method of choice given a specific condition or specific goal of treatment. For example, Covid-19 is having a mental health impact on many people, and seeking short-term treatment may be warranted.

When seeking treatment, determining what technique is most appropriate can be accomplished by considering a variety of areas: the reason/goal of treatment, age and diagnosis of the client, the personality, cognitive and language capacity of the client as well as the cultural/family background and personal experiences. There are upwards of 100 different types of psychotherapeutic approaches, so knowing which one to try is an important decision. Many clients at NESCA present with learning differences, anxiety, OCD, depression, trauma, substance abuse and more. The following partial list includes some of the treatment approaches beneficial to and used by many NESCA clients.

Acceptance and Commitment Therapy

Attachment-based Therapy

Animal-assisted Therapy

Biofeedback

Cognitive Behavior Therapy (CBT)

Dialectic Behavior Therapy (DBT)

Exposure & Response Prevention Therapy

Expressive Therapy (Art, music, drama, etc.)

Mindfulness-based Cognitive Therapy

Motivational Interviewing

Parent-Child Interaction Therapy

Play Therapy

Psychoeducational Counseling

Trauma-focused Cognitive Behavioral Therapy

At NESCA, we are currently offering short-term psychological treatment for Covid-19 mental health challenges as well as long-term psychoeducational treatment. If you are interested in learning about these options, visit: https://nesca-newton.com/integrativetherapeutic/.

More information about treatment approaches can be found at: https://www.psychologytoday.com/us/types-of-therapy

 

References:

https://www.nami.org/learn-more/treatment/psychotherapy

https://www.mhanational.org

https://www.mentalhealth.gov

https://www.psychiatry.org/newsroom/news-releases/new-poll-covid-19-impacting-mental-well-being-americans-feeling-anxious-especially-for-loved-ones-older-adults-are-less-anxious

 

About the Author

NESCA’s Director of Consultation and Psychoeducational Services Dot Lucci has been active in the fields of education, psychology, research and academia for over 30 years. She is a national consultant and speaker on program design and the inclusion of children and adolescents with special needs, especially those diagnosed with Autism Spectrum Disorder (ASD). Prior to joining NESCA, Ms. Lucci was the Principal of the Partners Program/EDCO Collaborative and previously the Program Director and Director of Consultation at MGH/Aspire for 13 years, where she built child, teen and young adult programs and established the 3-Ss (self-awareness, social competency and stress management) as the programming backbone. She also served as director of the Autism Support Center. Ms. Lucci was previously an elementary classroom teacher, special educator, researcher, school psychologist, college professor and director of public schools, a private special education school and an education collaborative.

Ms. Lucci directs NESCA’s consultation services to public and private schools, colleges and universities, businesses and community agencies. She also provides psychoeducational counseling directly to students and parents. Ms. Lucci’s clinical interests include mind-body practices, positive psychology, and the use of technology and biofeedback devices in the instruction of social and emotional learning, especially as they apply to neurodiverse individuals.

 

To book a consultation with Ms. Lucci or one of our many expert neuropsychologists, complete NESCA’s online intake form. Indicate whether you are seeking an “evaluation” or “consultation” and your preferred clinician/consultant in the referral line.

 

Neuropsychology & Education Services for Children & Adolescents (NESCA) is a pediatric neuropsychology practice and integrative treatment center with offices in Newton, Massachusetts, Plainville, Massachusetts, and Londonderry, New Hampshire, serving clients from preschool through young adulthood and their families. For more information, please email info@nesca-newton.com or call 617-658-9800.

 

7

Behavior Happens! But Does It Have To?

By | NESCA Notes 2020

By Dot Lucci, M.Ed., CAGS

Director of Consultation and Psychoeducational Services, NESCA

Recently, I’ve written a few blogs about behavior management and meltdowns and being a behavior detective. I thought I’d end the behavior series with a blog on how to prevent meltdowns from occurring, or at least try to prevent them! Obviously, preventing meltdowns is the best option if at all possible. No one likes to be around a meltdown, and the child doesn’t like it either.

There are many different experts with their own methods and strategies, but most start with common principles. Know yourself, know your child, meet him/her where they are, know what makes them tick and what works for them, as every child is different. It’s the behavior that is unacceptable, not the child. The child is still valued and loved; the behavior isn’t.

Kids will be kids, and they will lose control. Hopefully, over time, they learn self-control and emotional regulation. But the brain’s frontal lobes which control executive function, which includes behavioral control, don’t fully develop until the child I in his or her late 20’s…so buckle up as it’s going to be a long ride! Remember a meltdown is a child’s best attempt in the moment. It is the fight, flight and fright/freeze response. Trying to prevent these from happening are good for the child and the whole family. Life isn’t perfect and meltdowns will occur, but let’s try to lessen their frequency by employing some of the following:

  • Pick your battles—What’s negotiable and what’s non-negotiable? Make sure your kids know the list of “have-to’s” or non-negotiables. Simplify rules and make them realistic to the age of your child. Don’t make a rule/consequence that you cannot be consistent with or follow through with.
  • Keep calm in the eye of the storm.
  • Catch ‘em being good and let them know you saw them behaving well.
  • Tell your child what you want him or her to do, not what you don’t want them to do. Kids do the best they can in the moment.
  • Whenever possible, limit the amount of times you say the word “No.” Leave “No” for safety concerns. Instead, give information, and acknowledge and accept your child’s feelings/opinions. Substitute a “yes” for a “no” and use fantasy talk. “Yes, I wish you could stay up late, too, but we have to get up early tomorrow.”
  • Don’t phrase things so kids can say ‘no’ if the answer “no” isn’t an option. Wording and phrasing matters. Sometimes indirect requests get better results than directives. Explain your reason for non-negotiables (even if they don’t agree or like them). Do some tasks together that are problematic for your child. Shared ownership is better than no ownership.
  • Allow choice and control whenever possible. Don’t get into power struggles you will lose.
  • Having agency and mastery helps all kids grow and learn.
  • Consistency, Structure and Predictability are providers of Stability and Simplicity that enable your child to Anticipate, which is a means to enhance independence.
  • Clear rules, expectations and consequences provide organization, safety, structure and limits while enhancing mastery, self-control and improved self-efficacy.
  • Children don’t have the same sense of time or urgency as adults do, so allow for extra time to complete tasks when possible and use timers to help them organize their time.
  • Use humor and distraction to achieve desired results.
  • Compromise, Flexibility and Negotiation done proactively can go a long way. Work with your child to solve problems before they occur. Be flexible when necessary and make a compromise. Provide your reasoning for the compromise. This is not bribing; rather this approach teaches valuable lessons in win-win solution making, negotiation, compromise, flexibility, fairness and trust. Use this approach next time, and your child will hopefully, over time, learn these valuable lessons/skills.
  • Know your child’s triggers and be prepared. Try to eliminate/lessen them if possible. If they can’t be lessened, teach your child  the necessary tools to cope with them during more calm moments.
  • Know your child’s limits regarding experiences (i.e. downtime, waiting, loosing at games, etc., sensory needs (i.e. hunger, tiredness, sensitivities, etc.) and take these and other areas into consideration. Be prepared and think ahead.

 

Resources to consider:

 

About the Author

NESCA’s Director of Consultation and Psychoeducational Services Dot Lucci has been active in the fields of education, psychology, research and academia for over 30 years. She is a national consultant and speaker on program design and the inclusion of children and adolescents with special needs, especially those diagnosed with Autism Spectrum Disorder (ASD). Prior to joining NESCA, Ms. Lucci was the Principal of the Partners Program/EDCO Collaborative and previously the Program Director and Director of Consultation at MGH/Aspire for 13 years, where she built child, teen and young adult programs and established the 3-Ss (self-awareness, social competency and stress management) as the programming backbone. She also served as director of the Autism Support Center. Ms. Lucci was previously an elementary classroom teacher, special educator, researcher, school psychologist, college professor and director of public schools, a private special education school and an education collaborative.

Ms. Lucci directs NESCA’s consultation services to public and private schools, colleges and universities, businesses and community agencies. She also provides psychoeducational counseling directly to students and parents. Ms. Lucci’s clinical interests include mind-body practices, positive psychology, and the use of technology and biofeedback devices in the instruction of social and emotional learning, especially as they apply to neurodiverse individuals.

 

To book a consultation with Ms. Lucci or one of our many expert neuropsychologists, complete NESCA’s online intake form. Indicate whether you are seeking an “evaluation” or “consultation” and your preferred clinician/consultant in the referral line.

 

Neuropsychology & Education Services for Children & Adolescents (NESCA) is a pediatric neuropsychology practice and integrative treatment center with offices in Newton, Massachusetts, Plainville, Massachusetts, and Londonderry, New Hampshire, serving clients from preschool through young adulthood and their families. For more information, please email info@nesca-newton.com or call 617-658-9800.

 

6

There’s an App for That!

By | NESCA Notes 2020

By Dot Lucci, M.Ed., CAGS

Director of Consultation and Psychoeducational Services, NESCA

In this time of “telehealth” and “remote learning” adults, teens and children are being bombarded with virtual platforms such as Zoom, Microsoft Teams, Google Hangouts/Meets and more.  Some teachers and students are being asked to use Google Classroom, Blackboard and other classroom-based platforms for the first time. I am of the mindset that this virtual learning and health management approach will be with us even when this pandemic subsides and we “go back to normal.” I’m also afraid that the normal we knew won’t be the normal of the future.

With this in mind I began to think that with all the time some of us have on our hands, wouldn’t it be interesting to “assess” or evaluate the variety of apps that are out there now (and there are tons!)? A middle schooler could do the research with some guidance from parents, teachers, IT professionals or others from their schools. In many middle schools, students are being taught how to critically analyze social media and news reports; why not extend this critical eye to apps? For instance, have your middle schooler research apps that address a variety of topics, such as executive functioning areas (i.e. time management, distraction, organization, etc.), social-emotional well-being and so on. With some guiding questions, help from adults and a way to tally or track data, they could decide which app they think would help them best and why. A sample list of questions may include:

  • What problem am I trying to solve?
  • What need am I trying to fill?
  • When was the app created?
  • Who created it?
  • Who was it created for?
  • How many positive reviews?
  • How many negative reviews?
  • What platform does it use?
  • How much does it cost?
  • What features does it have? Do they solve my problem?
  • How easy is it to operate initially and once I get it set up?
  • Will it work with the other programs I have running?

There are many other questions that one could ask to “evaluate” an app to help solve a specific problem. Your child and you can generate your own questions to add to this list then download and try your top choice. Try it for at least a couple of weeks and create a rating scale to evaluate its helpfulness in solving the problem. If you are satisfied, then no need to try another one. If not, download another one and repeat the procedure.

Here’s a list of various apps that address EF needs. There are many more, and these are in no particular order.

 

Scheduling/Calendar/To Do/Reminders

Pocket Informant

Forgetful

Built-in Calendar App on your smartphone

MemoCal Lite

Visual Schedule Planner

Choice Works

Pocket Picture Planner

Can Plan

30/30

Toodledo

Jot Free

My Homework

 

Time

Time Timer

Giant Timer

Time Meter Time Tracker

 

Social-emotional

Calm

Breathe2Relax

Sosh

Smiling Mind

The Social Express

Stop. Breathe. Think

Hidden Curriculum

Middle School Confidential

Model Me

Take A Chill

emotionary

 

About the Author

NESCA’s Director of Consultation and Psychoeducational Services Dot Lucci has been active in the fields of education, psychology, research and academia for over 30 years. She is a national consultant and speaker on program design and the inclusion of children and adolescents with special needs, especially those diagnosed with Autism Spectrum Disorder (ASD). Prior to joining NESCA, Ms. Lucci was the Principal of the Partners Program/EDCO Collaborative and previously the Program Director and Director of Consultation at MGH/Aspire for 13 years, where she built child, teen and young adult programs and established the 3-Ss (self-awareness, social competency and stress management) as the programming backbone. She also served as director of the Autism Support Center. Ms. Lucci was previously an elementary classroom teacher, special educator, researcher, school psychologist, college professor and director of public schools, a private special education school and an education collaborative.

Ms. Lucci directs NESCA’s consultation services to public and private schools, colleges and universities, businesses and community agencies. She also provides psychoeducational counseling directly to students and parents. Ms. Lucci’s clinical interests include mind-body practices, positive psychology, and the use of technology and biofeedback devices in the instruction of social and emotional learning, especially as they apply to neurodiverse individuals.

 

To book a consultation with Ms. Lucci or one of our many expert neuropsychologists, complete NESCA’s online intake form. Indicate whether you are seeking an “evaluation” or “consultation” and your preferred clinician/consultant in the referral line.

 

Neuropsychology & Education Services for Children & Adolescents (NESCA) is a pediatric neuropsychology practice and integrative treatment center with offices in Newton, Massachusetts, Plainville, Massachusetts, and Londonderry, New Hampshire, serving clients from preschool through young adulthood and their families. For more information, please email info@nesca-newton.com or call 617-658-9800.

 

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