Transition Services

11

Image of the words Fading Prompts fading out

Helping Students Become Independent: The Role of Fading Prompts

By | NESCA Notes 2024

Image of the words Fading Prompts fading out By: Sarah LaFerriere, M.Ed.
Transition Specialist & Special Educator, NESCA

Supporting students with disabilities is an experience filled with opportunities to help them grow and succeed. One key area to focus on is promoting independence, which involves carefully managing the use of prompts. If not handled well, prompt dependence can become a significant barrier, especially as students move toward transition age.

What is Prompt Dependence?
Prompt dependence happens when students become overly reliant on external cues, like verbal or written instructions or physical guidance – from teachers, therapists, or caregivers. While prompts are a helpful tool in teaching, over time, too much reliance on them can make it difficult for students to act independently. This can become a bigger issue as they get older and need to function more independently in real-world situations, such as in jobs or community settings.

Why Fading Prompts Matters and How to Do It
Fading prompts is a technique used to gradually decrease the level of support given to students, helping them gain the skills they need to act independently. The goal is to provide enough support initially so that students can learn, and then slowly reduce that support as they become more capable on their own. This isn’t about suddenly withdrawing help but rather about making a gradual shift that encourages students to rely on their own skills.

Start Early—Addressing prompt dependence early on is crucial. When introducing prompts, consider how you’ll gradually reduce them. For younger students, this could mean starting with more hands-on assistance and gradually moving to less direct forms of support, such as verbal or visual cues.
Reduce Support Gradually—Fading prompts involves a step-by-step reduction of assistance. Begin with more direct prompts and, as the student improves, shift to more subtle forms of support. It’s important to pace this reduction based on the student’s progress, ensuring they have enough opportunity to practice and succeed before making further changes.
Promote Self-awareness—Encouraging students to recognize when they need help and how to seek it can be very effective. By developing self-monitoring skills, students can learn to manage their own needs and understand when they are capable of performing tasks on their own.
Be Consistent and Patient—Consistency among all those involved in a student’s education is key. This means that teachers, therapists, and family members should use the same approach and follow the same plan for reducing prompts. Patience is also important, as progress can be gradual and may require repeated practice.
Customize Approaches—Every student is different, and so their path to independence will be unique. Tailoring the approach to each student’s specific needs can make a big difference. This might involve adjusting how quickly prompts are faded or choosing the types of support that work best for the student. Regularly reviewing and adjusting the plan ensures that students are receiving the right level of support.

Involving Families and Service Providers
Families and service providers are essential in this process. Good communication and teamwork between educators, therapists, and families help create a consistent approach to fading prompts. Families can support the skills being taught in various settings, and service providers can offer valuable insights and guidance.

Preparing for the Future
As students reach transition age, being able to act independently becomes even more important. By addressing prompt dependence early and using effective fading techniques, we can help students develop the skills and confidence they need for adult life. This preparation not only aids students but also benefits their families and communities by fostering a more inclusive environment.

In summary, fading prompts is a crucial practice in helping students with disabilities become more independent. By understanding and applying strategies to reduce prompt dependence, we can better prepare students for a future where they can navigate the world with confidence and self-sufficiency. This not only supports the students but also contributes to a more supportive and inclusive community.

About the Author

Sarah LaFerriere, M.Ed., is a transition specialist and special educator who has nearly a decade of experience working with transition aged students in public schools, college, and home-based settings. She provides transition assessment, consultation, and coaching services to a wide range of clients, and specializes in supporting students with autism, intellectual disabilities, developmental disabilities, mental health conditions, and medical conditions.

To book a consultation with Sarah LaFerriere or one of our many other expert transition specialists, neuropsychologists, or other clinicians, complete NESCA’s online intake form.

NESCA is a pediatric neuropsychology practice and integrative treatment center with offices in Newton, Plainville, and Hingham, Massachusetts; Londonderry, New Hampshire; the greater Burlington, Vermont region; and Brooklyn, New York (coaching services only) serving clients from infancy through young adulthood and their families. For more information, please email info@nesca-newton.com or call 617-658-9800.

48

How Do You Know if an IEP Addresses Transition Planning Requirements?

By | NESCA Notes 2024

By: Kelley Challen, Ed.M., CAS
Director of Transition Services, NESCA

As educators and professionals who support parents, having a checklist focused on transition planning requirements for students with disabilities can help to ensure that students are prepared for life after high school.

The most obvious source for such a checklist is Indicator 13, which is a compliance indicator required by the Individuals with Disabilities Education Act (IDEA) of 2004.

Every IEP must include a transition plan that addresses the student’s future goals, including postsecondary education, vocational training, employment, and independent living (when appropriate) and the steps needed to achieve those goals.

Here’s a checklist of what should be included in a transition-rich IEP:

Age-appropriate Transition Assessment: Adequate transition assessment information (including input from the student) about the student’s strengths, preferences, interests, and needs.
Measurable Postsecondary Goals: Clearly defined goals related to training, education, employment, and, where appropriate, independent living skills. These goals must be based on age-appropriate transition assessments and be updated annually.
Transition Services: A detailed outline of the transition services (e.g., life skills training, job coaching, vocational training, career counseling, work-based learning, agency linkages, etc.) that will reasonably enable the student to meet their postsecondary goals.
Course of Study: A multi-year description of the coursework that will reasonably enable the student to meet their postsecondary goals. Indication as to when the student is expected to exit public education and what type of completion document the student will attain.
Annual IEP Goals: Specific, measurable, annual skill-based goals related to the student’s transition services needs. Skills that need to be addressed this year to ensure the student progresses toward their goals.
Student Involvement: Indication that the student was invited to meetings where transition services were discussed. Documentation that the student has been involved in the transition planning process.
Interagency Coordination: If appropriate, evidence that outside agencies (e.g., vocational rehabilitation, pre-employment transition service provider, department of developmental services, postsecondary education admissions or disability services, center for independent living) are involved in the transition planning with appropriate consent from the adult student and/or parent/family.

Remember: Transition planning is a collaborative effort. Student and parent/family involvement are vital to creating a successful roadmap for the student’s future.

For more detailed information, feel free to reach out or visit the IDEA website: https://sites.ed.gov/idea.

National Technical Assistance Center on Transition also has excellent Indicator 13 checklists and training resources: https://transitionta.org/i13-checklists/ (registration is required to use the site, but there is no paywall).

Together, let’s empower students to make a successful transition into adulthood!

About the Author
Kelley Challen, Ed.M., CAS, is an expert transition specialist and national speaker who has been engaged in evaluation, development, and direction of transition-focused programming for teenagers and young adults with a wide array of developmental and learning abilities since 2004. While Ms. Challen has special expertise in working with youth with autism, she enjoys working with students with a range of cognitive, learning, communication, social, emotional and/or behavioral needs.

Ms. Challen joined NESCA as Director of Transition Services in 2013. She believes that the transition to postsecondary adulthood activities such as learning, living, and working is an ongoing process–and that there is no age too early or too late to begin planning. Moreover, any transition plan should be person-centered, individualized and include steps beyond the completion of secondary school.

Through her role at NESCA, Ms. Challen provides a wide array of services including individualized transition assessment, planning, consultation, training, and program development services, as well as pre-college coaching. She is particularly skilled in providing transition assessment and consultation aimed at determining optimal timing for a student’s transition to college, technical training, adult learning, and/or employment as well as identifying and developing appropriate programs and services necessary for minimizing critical skill gaps.

Ms. Challen is one of the only professionals in New England who specializes in assisting families in selecting or developing programming as a steppingstone between special education and college participation and has a unique understanding of local postgraduate, pre-college, college support, college transition, postsecondary transition, and 18-22 programs. She is additionally familiar with a great number of approved high school and postsecondary special education placements for students from Massachusetts including public, collaborative, and private programs.

Ms. Challen enjoys the creative and collaborative problem-solving process necessary for successfully transitioning students with complex profiles toward independent adulthood. As such, she is regularly engaged in IEP Team Meetings, program consultations, and case management or student coaching as part of individualized post-12th grade programming. Moreover, she continually works to enhance and expand NESCA’s service offerings in order to meet the growing needs of the families, schools and communities we serve.

When appropriate, Ms. Challen has additionally provided expert witness testimony for families and school districts engaged in due process hearings or engaged in legal proceedings centering on transition assessment, services and/or programming—locally and nationally.

Nearly two decades ago, Ms. Challen began her work with youth with special needs working as a counselor for children and adolescents at Camp Good Times, a former program of Milestones Day School. She then spent several years at the Aspire Program (a Mass General for Children program; formerly YouthCare) where she founded an array of social, life and career skill development programs for teens and young adults with Asperger’s Syndrome and related profiles. Also, she worked at the Northeast Arc as Program Director for the Spotlight Program, a drama-based social pragmatics program, serving youth with a wide range of diagnoses and collaborating with several school districts to design in-house social skill and transition programs.

Ms. Challen received her Master’s Degree and Certificate of Advanced Graduate Study in Risk and Prevention Counseling from the Harvard University Graduate School of Education. While training and obtaining certification as a school guidance counselor, she completed her practicum work at Boston Latin School focusing on competitive college counseling.

Ms. Challen has worked on multiple committees involved in the Massachusetts DESE IEP Improvement Project, served as a Mentor for the Transition Leadership Program at UMass Boston, participated as a member of B-SET Boston Workforce Development Task Force, been an ongoing member of the Program Committee for the Association for Autism and Neurodiversity (AANE), and is a member of the New Hampshire Transition State Community of Practice (COP).

She is also co-author of the chapter, “Technologies to Support Interventions for Social-Emotional Intelligence, Self-Awareness, Personality Style, and Self-Regulation,” for the book Technology Tools for Students with Autism: Innovations that Enhance Independence and Learning.

To schedule an appointment with one of NESCA’s transition specialists, please complete our online intake form.

NESCA is a pediatric neuropsychology practice and integrative treatment center with offices in Newton, Plainville, and Hingham, Massachusetts; Londonderry, New Hampshire; the greater Burlington, Vermont region; and Brooklyn, NY (coaching services only) serving clients from infancy through young adulthood and their families. For more information, please email info@nesca-newton.com or call 617-658-9800.

25

American flag with the word VOTE under it

Voting Rights and Supports for People with Disabilities 2024

By | NESCA Notes 2024

American flag with the word VOTE under it By: Tabitha Monahan, M.A., CAGS, CRC
NESCA Transition Specialist/Counselor

The election season is often thought to begin in full force after Labor Day. However, this summer has been full of unexpected events that have brought the 2024 General Election to the forefront of many people’s minds for much of the summer. One aspect that is not often covered in detail with our transition-aged youth, is that once they are 18, they are now eligible to register (…if they have not already. In Massachusetts, youth can pre-register at age 16!), and vote in local, state, and federal elections. However, many of the teens and young adults who I work with are unsure how to navigate the election process and what their rights as citizens with disabilities are to express their opinion by casting their vote.

There’s good news on the voting front. According to Disability Research at Rutgers University and the U.S. Election Assistance Commission (EAC), 62% of individuals with disabilities voted in the 2020 election, an uptick from previous elections, thought to be due to the increased availability of voting options, such as mail-in and early voting. There was also a significant decrease in the number of people with disabilities who had difficulties voting in 2020, down from 26% to 11%. If you want to learn more about voter turnout by individuals with disabilities, read more in the Disability and Voter Turnout in the 2020 Elections Fact Sheet.

While numbers are heading in the right direction, we’d still like to help our young people with disabilities exercise their right to vote. In Massachusetts, even individuals with guardianship maintain their right to vote unless the court documents specifically state otherwise. There are many ways to support individuals, but it starts with helping them register. Massachusetts residents can register to vote online, when obtaining or renewing a driver’s license or state ID, or at the local registrar of voters’ office. Notices from MassHealth and the Department of Transitional Assistance (DTA) also include voter registration forms.

Absentee/mail-in ballots – Every registered voter should have received a postcard/mailing within the past few weeks to request an absentee ballot from the Secretary of State. If you are not sure if you and/or your loved one received one, it looks like this:

Image of Official Application for Massachusetts voters to request a mail-in/absentee ballot Photo Credit: Rep. Jack Patrick Lewis via X @RepJackLewis

All citizens are also allowed to bring a person to help them while they are at the polls. Encourage your young person by letting them know that many people require assistance at the polls, and it is completely normal to have someone help them if they need it. Each polling location should also have at least one AutoMARK Voter Assist Terminal, which helps individuals with visual impairments vote independently.

No one wants their vote not to be counted due to errors in filling out their ballot. People can request a sample ballot in advance from their local registrar of voters (the Secretary of State’s website can give you the address and phone number of your local registrar). Practicing filling out ballots in advance (even ballots from previous elections) can help a new voter become comfortable with the form and is great fine motor skill practice for those who may need it! When you check your voter registration status, sometimes the sample ballot is available right on that website. As of July, primary ballots from the previous state-level election were still posted on the state’s website. People can bring notes with them to the polls, so brining their completed sample ballot or notes on who they want to vote for and if they are voting yes or no on an issue can be incredibly beneficial for everyone, but certainly for folks who may have difficulty remembering their choices when they are at their polling place.

The Massachusetts Secretary of State also creates a voter information booklet for each election regarding the ballot initiatives. Starting in early October, these red booklets can be found at many community locations, such as local libraries, post offices, and city/town halls. These booklets offer information on what a yay or nay vote would mean and have information from each initiative’s proponents and opponents. Use that sample ballot as a starting point for the different types of ballot questions and elected positions.

Talk with them about current events and issues – The news can seem scary and overwhelming, and the advent of social media has further swarmed the sources of information available to people. It’s important to ask our transition-aged youth what they are seeing and hearing about events occurring in the world. It does not need to just be the hot button issues of the day. Talk to them about news topics of interest, like upcoming local events or events like the Olympics. Check-in with them on their understanding of reliable sources of information. Do they know how to tell if something was likely a deep fake, created with AI, or otherwise manipulated or photoshopped? Suggestions that people may want to consider when deciding if something is a reputable source can be found at the website: Tabitha Says So. FYI. Another resource that provides more information and lessons on both obtaining accurate information and understanding the different levels and roles of government and how to advocate for themselves within government is iCivics. They provide wonderful resources that can help individuals, teachers, and their families prepare for this upcoming and future elections.

Keep in mind that the key dates and deadlines for voting in this fall’s elections in Massachusetts are as follows:

State Primary Voter Registration Deadline: August 24^th
Vote by Mail Application Deadline: August 26^th
State Primary Tuesday: September 3^rd
First Day of in person Early Voting: October 19^th
Last Day to register for General Election: October 26^th
Vote by Mail Application Deadline: October 29^th
Last Day of in person Early Voting: November 1^st
Election Day: November 5^th
Election Day Polling Hours: 7:00 a.m. – 8:00 p.m.

Help your young adult find out what the different roles of government boards do and why there is an election for things such as Governor’s Councillor or Clerk of Courts. Help them find the websites for candidates running for office and review the candidates’ stances on issues. Ask what issues they want to learn more about, and which are important to them. This fall, Massachusetts voters will be casting their votes for a large lineup of roles to fill, with the following positions on the ballot.

President and Vice President of the United States (Electors of)
Representatives in Congress (Federal)
Senator (Federal)
Governor’s Councillor
State Senator
State Representative
Register of Deeds
Clerk of Courts
County Commissioner (county level only in certain counties)
Additional local offices (only certain cities & towns)
Ballot Questions

Most importantly, remind them that their vote counts. As many disability rights activists have said, “nothing about us without us.” Individuals with disabilities are greatly affected by the policy decisions that occur in government at all levels. Since many individuals with disabilities have frequently experienced disenfranchisement, there are numerous groups working tirelessly to lessen and remove these barriers. How have you helped your young adult exercise their right to vote?

Important Links:

Voting Website for the Secretary of State: https://www.sec.state.ma.us/ele/eleidx.htm
Voting with Disabilities Website from the Secretary of State: https://www.sec.state.ma.us/ele/eleaccessible/accessibleidx.htm
Where Do I Vote: https://www.sec.state.ma.us/WhereDoIVoteMA/WhereDoIVote There is an option to see sample ballots

About the Author

Tabitha Monahan, M.A., CAGS, CRC, is an experienced transition evaluator and vocational counselor. While she is well-versed in supporting a wide range of transition-aged youth, she is especially passionate and knowledgeable in helping clients and their families navigate the complex systems of adult services and benefits as well as medical and mental health systems. She is further adept in working individually with students of all abilities to empower self-advocacy and goal achievement.

To schedule an appointment with one of NESCA’s expert transition specialists or neuropsychologists, please complete our online intake form.

NESCA is a pediatric neuropsychology practice and integrative treatment center with offices in Newton, Plainville, and Hingham, Massachusetts; Londonderry, New Hampshire; the greater Burlington, Vermont region; and Brooklyn, NY (coaching services only), serving clients from infancy through young adulthood and their families. For more information, please email info@nesca-newton.com or call 617-658-9800.

7

Technology Tools to Boost Your Productivity Part 3

By | NESCA Notes 2024

By: Lyndsay Wood, OTD, OTR/L
NESCA Executive Function and Real-life Skills Program Manager

Summer is coming! We are finally feeling that sunshine on our skin. You may be noticing your motivation increasing as you thaw from your winter hibernation. A lot of people find that this is a great time to start tackling those goals and projects you have been putting off through the dark days of winter. Perhaps now it is time to do that thorough spring clean, or maybe you want to meet a new fitness goal. No matter what you are trying to do, there are technology tools that can help. Below is a list of apps that can help kickstart that renewed sense of motivation you may be feeling. These are just a few tools, but please feel free to check out my previous two blogs on this topic to find even more helpful tools and apps.

Todoist: Todoist is a task management app that helps you organize and prioritize your tasks effectively. Through this app, you can create to-do lists, set deadlines, and manage your activities. Todoist integrates with various other apps and platforms, making it easier to keep track of your tasks across all your devices.
TickTick: No, I do not mean TikTok, which typically has the opposite effect on productivity and motivation! TickTick combines a to-do list and a calendar. It allows you to create tasks, set reminders, and even track your habits.
Shmoody: Shmoody is an app designed to help improve your mood and overall mental health. Whether you’re dealing with stress, anxiety, or just feeling down, Shmoody offers practical activities and tools to boost your spirits. The app provides daily mood check-ins, gratitude journaling, and guided exercises to help you develop a positive mindset. It also allows you to set goals and objectives for the day.
Remove Distracting Apps: Perhaps it is time for a social media detox. Are you finding yourself scrolling endlessly through TikTok, Instagram, etc.? Discover which app you are using the most and take a break. Maybe it is just for the afternoon, or maybe a whole month. See how your productivity, mood, and motivation change when you step away from the scroll. Use built-in features on your smartphone, like Screen Time on iOS or Digital Wellbeing on Android, to track your app usage and set limits. Taking a break from distracting apps can free up your time and mental space, allowing you to focus on more meaningful activities and goals.

Embrace the summer energy and make the most of these tools to boost your motivation and productivity. Whether you’re aiming to improve your mental health, get organized, or eliminate distractions, these apps can help you achieve your summer goals. Happy summer!

About Lyndsay Wood, OTD, OTR/L

Lyndsay Wood, OTD, OTR/L, Vermont-based Executive Function and Real-life Skills Program Manager, is an occupational therapist who focuses on helping students and young adults with disabilities to build meaningful skills in order to reach their goals. She has spent the majority of her career working in a private school for students with ASD. She has also spent some time working in an inpatient mental health setting. Lyndsay uses occupation-based interventions and strategies to develop life skills, executive functioning, and emotional regulation. While completely her doctoral degree at MGH Institute of Health Professions, Lyndsay worked with the Boston Center for Independent Living to evaluate transition age services. She uses the results from her research to deliver services in a way that is most beneficial for clients. Specifically, she focuses on hands-on, occupation-based learning that is tailored the client’s goals and interests.

Dr. Wood accepts Vermont- and Massachusetts-based transition and occupational therapy assessments. Her in-home and community-based coaching services are available in the greater Burlington, Vermont area. Dr. Wood can accept virtual coaching clients from both Massachusetts and Vermont.

To book coaching and transition services at NESCA, complete NESCA’s online intake form.

NESCA is a pediatric neuropsychology practice and integrative treatment center with offices in Newton, Plainville, and Hingham, Massachusetts; Londonderry, New Hampshire; the greater Burlington, Vermont region; and Brooklyn, New York (coaching services only) serving clients from infancy through young adulthood and their families. For more information, please email info@nesca-newton.com or call 617-658-9800.

13

Building Executive Function Skills over the Summer

By | NESCA Notes 2024

By: Kristen Simon, M.Ed, Ed.S
Transition Specialist; Psychoeducational Counselor

As the countdown to Summer begins post April vacation, teens are getting excited for this season of rest, with more time to socialize and spend their days doing the things they want to do. While the first two weeks tend to be filled with high energy and plans, as the summer continues, the energy starts to slow down and boredom sets in. This part of the summer is a great time for adolescents to lean into building executive functioning skills that they may not have had time to practice fully during the school year. And the planning to do so should begin now, prior to the summer, instead of introducing this when they already feel unmotivated.

Executive dysfunction is supported through the school year with structure, routines, consistent visual schedules, online calendars, reminders, and many other external supports. As noted in previous blog posts for students with executive functioning challenges, the focus during the school year can easily fall into a pattern of “putting out fires” or providing intense support to catch up on never-ending assignments, instead of proactive skill building. The summer offers a low-pressure environment for students to practice planning, organizing, following through, and self-monitoring.

Some ways to practice and build these skills might include:

Manage their own schedule. Have your adolescent practice keeping a weekly schedule. Teens can print off a blank weekly schedule or utilize a digital version to list what needs to be accomplished each week (work, appointments, chores, exercise, social, hobbies, small goals) and plug these into a weekly checklist or visual calendar. At the end of each week, teens can reflect on how much they were able to follow the system they tried and what obstacles got in the way of anything they didn’t accomplish.
Practice setting alarms. Even if it’s for 10:15 AM (or later) and actually waking up at the time they needed to is important all year long. Allow them to troubleshoot if they sleep in, including what routine can they shift from the night before to meet this?
Set their own appointments. Is there a dentist appointment that needs to be made or a car service that family needs completed? Have your teen take ownership of calling or going online to make the appointment, tracking the appointment, and following through with going to the appointment.
Household chores. Ask your teen to take ownership of one part of the home (e.g., mowing the lawn). Work to schedule out how often throughout the summer this job needs to be completed and set a plan for how to follow through with this responsibility.
Make a meal for the family. Following through with all the steps included (finding a recipe, budgeting, food shopping, prepping, managing the timing of each item that needs to be cooked) is a great way to practice executive functioning skills.
Get a summer job. Working is a great way to build many executive functioning and self-determination skills for teens. Not only does it add structure to the week, it also helps with regulation and provides social opportunities.

Summer is a great time to build executive functioning skills for school but also life. If you’re interested in hearing more about NESCA’s executive functioning coaching session or real-life skills coaching, visit: https://nesca-newton.com/coaching-services/ or complete our Intake Form at: www.nesca-newton.com/intake.

About the Author

Kristen Simon, M.Ed, Ed.S, has worked with transition-aged youth as a licensed School Psychologist for more than a decade. She has extensive experience working with children and adolescents with a range of learning and social/emotional abilities. Kristen’s strengths lie in her communication and advocacy skills as well as her strengths-based approach. She is passionate about developing students’ self-awareness, goal-setting abilities, and vision through student-centered counseling, psychoeducation, social skills instruction, and executive functioning coaching. Mrs. Simon has particular interests working with children and adolescents on the Autism spectrum as well as individuals working to manage stress or anxiety-related challenges.

Mrs. Simon is an expert evaluator and observer who has extensive working knowledge of the special education process and school-based special education services, particularly in Massachusetts. She has been an integral part of hundreds of IEP teams and has helped to coordinate care, develop goals, and guide students and their families through the transition planning process. Mrs. Simon further has special expertise helping students to learn about their diagnoses and testing and the IEP process in general. She enjoys assisting students, families, and educators in understanding a student’s disability-related needs as well as the strategies that can help the student to be successful in both academic and nonacademic settings. Mrs. Simon has often been a part of teams in the years when students are initially participating in transition services, and she has helped countless students to build the skills necessary to be part of their first team meetings. She is committed to teaching students—as well as parents and educators—how to participate in student-centered team meetings and the IEP processes.

At NESCA, Mrs. Simon works as a transition specialist and psychoeducational counselor. She works with adolescents, their families, and their school communities to identify and build the skills necessary to achieve their postsecondary goals. Mrs. Simon provides transition assessment (including testing, functional evaluations, and observations), program observations and evaluations, case management and consultation, and individualized counseling and skills coaching.

To schedule an appointment with one of NESCA’s transition specialists, please complete our online intake form.

NESCA is a pediatric neuropsychology practice and integrative treatment center with offices in Newton, Plainville, and Hingham, Massachusetts; Londonderry, New Hampshire; and staff in the greater Burlington, Vermont region and Brooklyn, New York, serving clients from infancy through young adulthood and their families. For more information, please email info@nesca-newton.com or call 617-658-9800.

47

If My Child Attends a Residential School, Will the State Pay for Housing When They Graduate?

By | NESCA Notes 2024

By: Kelley Challen, Ed.M., CAS
Director of Transition Services, NESCA

The goal of transition services is to help students who are on IEPs to progress toward their measurable postsecondary goals. This includes planning for future learning and work situations, and also planning for future living—as independently as possible. An enormous challenge that comes up in this planning process is that families (and sometimes the professionals supporting them) do not fully understand the realities of housing for adults who have exited public education.

There is a common misconception that if your child has qualified for residential special education programming, that will mean that your child will qualify for residential support as an adult. However, adult human service supports are not an entitlement like special education—these services are voted on by state legislature. The truth is that adult services and benefits are built to fill in the gaps of what you cannot physically or financially do to support your child. If you are alive and you can reasonably take care of your child, even with support, that is what you will be expected to do. If, instead, you want your child to be able to live in their own home or a shared home, then you and your child will be responsible for figuring out how to find and fund that living situation.

Hopefully, this data, shared by Cathy Boyle of Autism Housing Pathways in a January presentation, titled “Thinking About Housing,” will help to hammer home this point. Cathy shared numbers from fiscal year 2021 which quantified some of the residential supports awarded to young adults in Massachusetts who turned 22 during that fiscal year. Specifically, there were 1,233 students turning 22 who were served by the Department of Developmental Services (DDS) in Massachusetts. Of that number, only 263 received “residential supports.” However, the majority of those “residential supports” were provided in shared living situations where the housing was not being funded by DDS. It was only about 100 individuals statewide who turned 22 and entered into brick-and-mortar homes funded by DDS.

Regarding who is able to secure DDS housing in Massachusetts, it is typically only available to individuals who have an intellectual disability that was diagnosed before age 18 and (1) are a danger to themselves, and/or (2) are a danger to others, and/or (3) have pica (a condition in which a person eats items not usually considered food). There are some other criteria considered, including whether the caregiver can keep the individual healthy and safe (based on caregiver criteria, such as age, health, employment) and the judgment of the evaluator from the state. But, as previously described, housing is reserved for individuals with the most significant needs. Also, while there is funding through DDS for day services for adults with autism in Massachusetts, this budget explicitly does not cover residential services or housing. Only individuals with autism who also meet the intellectual disability criteria are eligible for housing under standard criteria.

If your child has a mental health condition, you may wonder about housing through Department of Mental Health (DMH). While it’s difficult to find current statistics on the number of young adults turning 22 and receiving group home services, there is a limited number of beds, and eligibility criteria for DMH services specifies that you can only be eligible for services if they are actually available. Also, the criterion for housing is quite similar to DDS in that an individual has to be entirely unable to live at home even with intensive in-home support. This often equates to the same variable of whether your child is actively at risk of harming themselves or another person.

While I’m providing data from Massachusetts in order to exemplify these housing challenges, the struggles are similar, if not more difficult, across the United States. The reality is that if you have a child with a disability, you and your child are more than likely going to have to plan for and figure out how to pay for their housing in adulthood. This is one of the ways that our children are treated 100% similarly to nondisabled adults. Although having a disability may help your child to qualify for accommodations in adulthood, living accommodations are most often not part of that right.

Resources:

To learn more about housing in adulthood in Massachusetts, check out Autism Housing Pathways (which is not just for adults with autism): https://autismhousingpathways.org/the-current-housing-situation/
To find your local public housing agency in any state, visit the U.S. Department of Housing and Urban Development – https://www.hud.gov/program_offices/public_indian_housing/pha/contacts
Your local Independent Living Center is another great resource to learn about housing and resources for living in your local community: https://www.ilru.org/projects/cil-net/cil-center-and-association-directory

NESCA offers many services designed to help students bridge the transition from high school to college including executive function coaching, pre-college coaching, transition planning, and neuropsychological evaluation. To learn more specifically about our transition planning services, visit https://nesca-newton.com/transition/. To learn about other coaching services, visit: https://nesca-newton.com/coaching-services/. To schedule an appointment with one of our expert clinicians or coaches, please complete our intake at: https://nesca-newton.com/intake/.